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  1. European CommissionEU Science Hub
  2. European Platform on Rare Disease Registration
  3. ERDRI

ERDRI

Infrastructura registrului european pentru boli rare (ERDRI)

  • The European Directory of Registries
    State of the European Union 2017
     

    Directorul european al registrelor (ERDRI.dor)

    Oferă o imagine de ansamblu asupra registrelor de boli rare din Europa cu caracteristicile acestora

     
  • Central Metadata Repository
    State of the European Union 2017
     

    Depozitul central de metadate (ERDRI.mdr)

    Bază de date care conține elementele de date utilizate de registrele de boli rare           

     
  • Pseudonymisation tool
    State of the European Union 2017
     

    Instrumentul de pseudonimizare (ERDRI.spider)

    Serviciu care le oferă registrelor locale solutia pentru pseudonimizarea pacienților    

     
  • Search Broker (ERDRI.sebro)
    Search broker image
     

    Search Broker (ERDRI.sebro)

    ERDRI.sebro allows researchers to retrieve metatata of interest
     

European Platform on Rare Disease Registration

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