ERDRI

European Rare Disease Registry Infrastructure (ERDRI)

• The European Directory of Registries
  
   

  European Directory of Registries (ERDRI.dor)

  Overview of rare disease registries in Europe including their characteristics

• Central Metadata Repository
  
   

  Central Metadata Repository (ERDRI.mdr)

  Database containing the data elements used by rare disease registries

• Pseudonymisation tool
  
   

  Pseudonymisation
  tool

  Service offering registries at local level the solution for patient pseudonymisation