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  1. European CommissionEU Science Hub
  2. European Platform on Rare Disease Registration
  3. ERDRI

ERDRI

Infrastruktura europskih registara rijetkih bolesti (ERDRI)

  • The European Directory of Registries
    State of the European Union 2017
     

    Popis europskih registara (ERDRI.dor)

    Pregled registara rijetkih bolesti u Europi s njihovim svojstvima
     

     
  • Central Metadata Repository
    State of the European Union 2017
     

    Središnja baza metapodataka (ERDRI.mdr)

    Baza podataka s podatkovnim elementima upotrijebljenim pri registraciji rijetkih bolesti

     
  • Pseudonymisation tool
    State of the European Union 2017
     

    Alat za pseudonimizaciju (ERDRI.spider)

    Usluga koja registrima na lokalnoj razini nudi rješenje za pseudonimizaciju pacijenata

     
  • Search Broker (ERDRI.sebro)
    Search broker image
     

    Search Broker (ERDRI.sebro)

    ERDRI.sebro allows researchers to retrieve metatata of interest
     

European Platform on Rare Disease Registration

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