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  1. European CommissionEU Science Hub
  2. European Platform on Rare Disease Registration
  3. ERDRI

ERDRI

Eiropas Reto slimību reģistra infrastruktūra (ERDRI)

  • The European Directory of Registries
    State of the European Union 2017
     

    Eiropas reģistru direktorijs (ERDRI.dor)

    Eiropas reto slimību reģistru pārskats un to īpašības
     

     
  • Central Metadata Repository
    State of the European Union 2017
     

    Centrālais metadatu repozitorijs (ERDRI.mdr)

    Datubāze, kas ietver reto slimību reģistros izmantotos datu elementus
     

     
  • Pseudonymisation tool
    State of the European Union 2017
     

    Pseidonimizācijas rīks (ERDRI.spider)

    Pakalpojums, kas reģistriem vietējā mērogā nodrošina risinājumu pacientu pseidonimizācijai

     
  • Search Broker (ERDRI.sebro)
    Search broker image
     

    Search Broker (ERDRI.sebro)

    ERDRI.sebro allows researchers to retrieve metatata of interest
     

European Platform on Rare Disease Registration

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