ERDRI

Infrastruktura Europejskiego Rejestru Chorób Rzadkich (ERDRI)

• The European Directory of Registries
  
   

  European Directory of Registries (ERDRI.dor)

  Overview of rare disease registries in Europe including their characteristics

   
• Central Metadata Repository
  
   

  Central Metadata Repository (ERDRI.mdr)

  Database containing the data elements used by rare disease registries

   
• Pseudonymisation tool
  
   

  Pseudonymisation tool (ERDRI.spider)

  Service offering registries at local level the solution for patient pseudonymisation

   
• Search Broker (ERDRI.sebro)
  
   

  Search Broker (ERDRI.sebro)

  ERDRI.sebro allows researchers to retrieve metatata of interest