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  1. European CommissionEU Science Hub
  2. European Platform on Rare Disease Registration
  3. ERDRI

ERDRI

Infrastruktura Europejskiego Rejestru Chorób Rzadkich (ERDRI)

  • The European Directory of Registries
    State of the European Union 2017
     

    European Directory of Registries (ERDRI.dor)

    Overview of rare disease registries in Europe including their characteristics

     
  • Central Metadata Repository
    State of the European Union 2017
     

    Central Metadata Repository (ERDRI.mdr)

    Database containing the data elements used by rare disease registries

     
  • Pseudonymisation tool
    State of the European Union 2017
     

    Pseudonymisation tool (ERDRI.spider)

    Service offering registries at local level the solution for patient pseudonymisation

     
  • Search Broker (ERDRI.sebro)
    Search broker image
     

    Search Broker (ERDRI.sebro)

    ERDRI.sebro allows researchers to retrieve metatata of interest
     

European Platform on Rare Disease Registration

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