European Rare Disease Registry Infrastructure (ERDRI)
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The European Directory of Registries
European Directory of Registries (ERDRI.dor)
Overview of rare disease registries in Europe including their characteristics
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Central Metadata Repository
Central Metadata Repository (ERDRI.mdr)
Database containing the data elements used by rare disease registries
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Search Broker (ERDRI.sebro)
Search Broker (ERDRI.sebro)
ERDRI.sebro allows researchers to retrieve metatata of interest
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Pseudonymisation tool (ERDRI.spider)
Pseudonymisation tool (ERDRI.spider)
Service offering registries at local level the solution for patient pseudonymisation