Members
Elisa Ballardini
Ingeborg Barisic (geneticist)
Ester Garne (chair)
Jorieke Kammen-Bergman (geneticist)
Kathryn Johnson
Isabelle Perthus (geneticist)
David Tucker
Diana Wellesley (geneticist)
Aim
- to improve the standardised coding and classification of congenital anomalies in EUROCAT;
- to perform surveillance of isolated and multiple congenital anomalies
Tasks
- review EUROCAT subgroups for routine prevalence data
- review EUROCAT inclusions and exclusions
- give registries feedback on their coding of congenital anomalies
- give advice and guidance for coding to ensure uniformity and disseminate via EUROCAT coding tips
- review cases included in clusters and trends with feedback to local registries on their cluster cases
- classify multiple anomalies for separate surveillance
- respond to queries from registries on the coding of anomalies and syndromes, classification of anomalies and minor anomalies for exclusion
- review variables from Guide 1.5
- create validation routines when needed for the DMS to improve malformation coding
- organise coding workshops for Registry Leaders Meeting and elsewhere
Mode of operation
The coding committee will meet 2-3 times per year online or in person and will communicate by email.
Minutes from meetings will be placed on the closed website and mentioned in a EUROCAT communication.
Documents will be prepared for Guide 1.5 when subgroups and minors are revised.
Queries to be e-mailed to the chair who will answer the simple questions directly and circulate other questions to committee members.
Continuous communication of coding issues between Central Registry, Management Committee and the Coding and Classification Committee.
For any further question, please contact us at