Chair of the Coding and Classification Committee, Ester Garne (Denmark)
Ingeborg Barisic, geneticist (Croatia)
Jorieke Kammen-Bergman, geneticist (The Netherlands)
David Tucker (UK)
Diana Wellesley, geneticist (UK)


The Coding and Classification Committee, shortly Coding Committee, aims to improve standardised coding and classification of congenital anomalies in EUROCAT and to do surveillance of isolated and multiple congenital anomalies.


  • Give advice and guidance for coding to ensure uniformity and disseminate via EUROCAT coding tips.
  • Review cases included in clusters and trends/feedback to local registries on their cluster cases.
  • Classify multiple anomalies for separate surveillance.
  • Review EUROCAT subgroups for routine prevalence data.
  • Review EUROCAT inclusions and exclusions.
  • Review and comment on data from applicant and new registries.
  • Respond to queries from registries on the coding of anomalies and syndromes.
  • Respond to queries from registries on classification of anomalies and minor anomalies for exclusion.
  • Give registries feedback on their coding of congenital anomalies.
  • Create validation routines when needed for the EUROCAT Data Management Software (DMS) to improve malformation coding.
  • Organise coding workshops for RLM and elsewhere.
  • Communicate coding suggestions to ICD10/11.

Mode of operation

  • The Coding and Classification Committee meets 2-3 times per year and communicate by email.
  • Minutes from meetings are placed at the open website and mentioned in the JRC-EUROCAT communication.
  • Documents are prepared for Guide 1.5 when subgroups and minors are revised.
  • Queries are e-mailed to the Chair of the committee who will answer the simple questions directly and circulate other questions to committee members.
  • Continuous communication of coding issues between JRC-EUROCAT Central Registry, JRC-EUROCAT Management Committee and the Coding and Classification Committee.

Contact us at:

Coding Committee Work Documents