• New colleague(s) wanted!
    NEWS 17 May 2023

    New colleague(s) wanted!

    Ready & happy to help us in monitoring and designing better fight-against-cancer policies?
    Check our Job ads @EU_ScienceHub https://recruitment.jrc.ec.europa.eu/
    vacancy ref: 022917 - 022918 – 023016
    Fantastic bunch of people | your work will make a difference.

    2 positions for a Contract Agent FG IV - Project Officer
    Quality assurance activities on cancer - JRC F1 Disease Prevention
    2023-GEE-F1-FGIV-022917
    Deadline for applications: 22 May 2023 - 23.59 CET

    2 positions for a Contract Agent FG IV - Project Officer
    Guideline activities on cancer screening - JRC F1 Disease Prevention
    2023-GEE-F1-FGIV-022918
    Deadline for applications: 22 May 2023 - 23.59 CET

    1 position for a Contract Agent FG IV - Project Officer
    Public health data analyst - JRC F1 Disease Prevention
    2023-IPR-F1-FGIV-023016
    Deadline for applications: 05 June 2023 - 23.59 CET

  • SPIDER released
    ERDRI Tool - SPIDER
    NEWS 20 May 2022

    ERDRI.spider tool launch: It will foster research and better management of health data

    The EU RD Platform has just launched its new ERDRI tool, SPIDER (Secure Privacy-preserving Identity management in Distributed Environments for Research).
    SPIDER enables the pseudonymisation of rare disease patients’ data in local, regional and national rare disease registries all across Europe.
    Giving a pseudonym to a patient allows working with the patient’s data without revealing their identity at any point. In fact, this is the only safe way to exchange, share and transfer patient data for all types of studies (clinical, epidemiological, translational, pharmacological, etc.) and research, without revealing the patients’ identities.

  • Looking for experts
    NEWS 01 March 2021

    Looking for experts

    We are looking for an expert in information technology/computer science/data science for supporting the development of the European Platform on Rare Disease Registration (EU RD Platform).