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    NEWS 01 March 2021

    Looking for experts

    We are looking for an expert in information technology/computer science/data science for supporting the development of the European Platform on Rare Disease Registration (EU RD Platform).

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  • List item
    NEWS 28 February 2019

    Launch of the EU RD Platform

    The European Platform on Rare Disease Registration (EU RD Platform) was launched on Rare Disease Day 2019.