Data Collection

• Guidelines for data registration

  Guidelines for data registration

  Detailed EUROCAT guidelines for data collection, coding and classification of congenital anomalies and data transmission to the Central Registry.

   
• Data management program (EDMP)

  Data Management Software (DMS)

  Detailed description of the EUROCAT Data Management Software (DMS) for database management, data validation, reporting of prevalence and statistical monitoring of congenital anomalies.

   
• Data Quality

  Data Quality

  Data Quality Indicators (DQIs) assess five fey elements of data quality: completeness of case ascertainment, accuracy of diagnosis, completeness of information on EUROCAT variables, timeliness of data transmission and availability of population denominator information.

   

• Requesting EUROCAT data

  Requesting EUROCAT data

  EUROCAT encourages the use of its data for epidemiological surveillance and research. Read more about the conditions and procedures to request data.

   
• Exchange portal

  Data Exchange Portal

  Access to the Data Exchange Portal (for authorised EUROCAT members only).