Member Registries | European Platform on Rare Disease Registration

Member Registries (71)

Austria

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Styria

Registry leader: Prof Martin Haeusler Address: Styrian Malformation Registry, Dept. Obs. & Gyn., Medical Univ. Graz, Auenbruggerplatz 14, AT‐8036, Graz, Austria

Email: haeuslerm@aon.at Phone: +43 699 12 22 22 12 Fax: +43 316 683 683

Full member

Belgium

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Antwerp

Registry leader: Dr Elly Den Hond Address: Provinciaal Instituut voor Hygiene, Kronenburgstraat 45, B-2000, Antwerpen, Belgium

Email: elly.denhond@provincieantwerpen.be Phone: +32 3259 1266 Website: www.eurocat-network.eu

Full member
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Hainaut‐Namur

Registry leader: Prof C Verellen‐Dumoulin Address: Institut de Morphologie Pathologique, A en e G Lemaitre 25, B‐6041, Charleroi (Gosselies), Belgium

Email: christine.verellen.dumoulin@ipg.be Phone: +32 7144 7184 Fax: +32 7147 1520 Website: www.eurocat-network.eu

Full member

Bulgaria

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Pleven

Registry leader: Prof Katya Kovacheva Address: Medical University of Pleven, Section of Medical Genetics 1 Kilment Ohridski str., 5800 Pleven, Bulgaria

Email: katiakovach@gmail.com Phone: +359 64 884169 Fax: +359 64 822677

Full member

Croatia

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Zagreb

Registry leader: Dr Ljubica Odak Address: Klinika bolnica Sestre milosrdnice, Klinika za djecje bolesti Zagreb Klaiceva 16, CRO‐10000, Zagreb, Croatia

Email: ljubica.odak7@gmail.com Phone: +385 1 4600250

Full member

Denmark

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Funen

Registry leader: Dr Ester Garne Address: Paediatric Department Hospital, Lillebaelt Skovvangen 2-6, DK-6000 Kolding, Denmark

Email: egarne@dadlnet.dk Phone: +45 7636 2219 Fax: +45 7636 3474

Full member

France