Technical Notes on the excel table obtained exporting raw data

To read the table:

Calculation of Prevalence Rates

In EUROCAT prevalence calculations, a baby/fetus with several anomalies is counted once within each class of anomaly. The number in different classes cannot be added to reach a total number of babies/fetuses. A baby is counted once only in any given prevalence.

Differences in total prevalence over time or between regions may reflect one or more of the following factors: genetic differences, environmental differences, differences in diagnostic services, differences in the methods of collecting epidemiological data, and even chance differences (see Interpretation of prevalence).

Interpretation of Prevalence Rates

EUROCAT Registries follow a number of principles of organisation and registration (see Surveillance Strategy) to optimise the accuracy of estimation of prevalence rates and achieve standardisation across regions.

Data from the most recent year at the website is provisional as there is likely to be under-reporting as late diagnoses may not be included.

To have an overview of the aspects which have to be considered in the interpretation of the prevalence rates.

Coding of anomalies

Guide 1.4 reports EUROCAT Congenital anomalies subgroups codification in chapter 3.3