The Surveillance of Cerebral Palsy in Europe (SCPE) was established in 1998 as a collaboration of professionals and researchers working with cerebral palsy (CP) registries, bringing together paediatricians, paediatric neurologists, epidemiologists and therapists from across Europe.
The aim is to disseminate knowledge about CP through epidemiological data, to develop best practice in monitoring trends in CP, to raise standards of care for individuals with CP, to inform for service planning, and to provide a framework for collaborative research.
Why a European registry of children with CP?
It is important to measure trends in prevalence over time and to gain a better understanding of the causes of CP. Each registry collects information about all children born with CP within a region, and sends a common dataset to the SCPE Central Database. Data is then pooled and specific analyses are performed.
The collaboration is examining variations in clinical practices across Europe, access to health care and further refinement of how children with CP are described. As of 2017, the SCPE Common Database contains anonymized population data on more than 20,000 children with CP.
If you want to learn more about SCPE, please refer to our documentation: