European Platform on Rare Disease Registration

Publications (40)

Gastrostomy tube feeding of children with cerebral palsy: variation across six European countries

Dahlseng, M.O., Andersen, G.L., Da Graca Andrada, M., Arnaud, C., Balu, R., De La Cruz, J., Folha, T., Himmelmann, K., Horridge, K., Júlíusson, P.B., Påhlman, M., Rackauskaite, G., Sigurdardottir, S., Uldall, P., Vik, T., on behalf of the Surveillance of
Developmental Medicine & Child Neurology, 2012, 54: 938-944
doi:10.1111/j.1469-8749.2012.04391.x

Interrater reliability study of cerebral palsy diagnosis, neurological subtype, and gross motor function

Sellier, E., Horber, V., Krägeloh‐Mann, I., De La Cruz, J., Cans, C., On behalf of the SCPE Collaboration
Developmental Medicine & Child Neurology, 2012, 54: 815-821
doi:10.1111/j.1469-8749.2012.04359.x

Cerebral palsy among children born moderately preterm or at moderately low birthweight between 1980 and 1998: a European register‐based study

Andersen, G.L., Andersen, G.L., Romunstad, P., De La Cruz, J., Himmelmann, K., Sellier, E., Cans, C., Kurinczuk, J., Vik, T.
Developmental Medicine & Child Neurology, 2011, 53: 913-919
doi:10.1111/j.1469-8749.2011.04079.x

Trends in prevalence of cerebral palsy in children born with a birthweight of 2,500 g or over in Europe from 1980 to 1998

Sellier, E., Surman, G., Himmelmann, K., Andersen, G.L., Colver, A., Krägeloh‐Mann, I., De La Cruz, J., Cans, C.
Eur J Epidemiol , 2010, 25: 635

Dyskinetic cerebral palsy in Europe: trends in prevalence and severity

Himmelmann, K., McManus, V., Hagberg, G., Uvebrant, P., Krägeloh‐Mann, I., Cans, C. on behalf of the SCPE collaboration
Archives of Disease in Childhood, 2009, 94: 921-926

Surveillance of Cerebral Palsy in Europe: Reference and Training Manual

Platt, M.J., Krägeloh‐Mann, I., Cans, C.
Medical Education, 2009, 43: 495-496
doi:10.1111/j.1365-2923.2009.03351.x

Probability of Walking in Children With Cerebral Palsy in Europe

Beckung, E., Hagberg, G., Uldall, P., Cans, C., for Surveillance of Cerebral Palsy in Europe
Pediatrics, 2008, 121(1) : e187-e192
doi: 10.1542/peds.2007-0068

Validity and reliability of the guidelines of the Surveillance of Cerebral Palsy in Europe for the classification of cerebral palsy

Gainsborough, M., Surman, G., Maestri, G., Colver, A., Cans, C., on behalf of the Surveillance of Cerebral Palsy in Europe collaborative group
Developmental Medicine & Child Neurology, 2008, 50: 828-831
doi:10.1111/j.1469-8749.2008.03141.x

Recommendations from the SCPE collaborative group for defining and classifying cerebral palsy

Cans, C., Dolk, H., Platt, M.J., Colver, A., Prasausk1ene, A., Krägeloh‐Mann, I.
Developmental Medicine & Child Neurology, 2007, 49: 35-38
doi:10.1111/j.1469-8749.2007.tb12626.x

Intrauterine Growth and Cerebral Palsy in Twins: A European Multicenter Study

Glinianaia, S.V., Jarvis, S., Topp, M., Guillem, P., Platt, M.J., Pearce, M.S., Parker, L. and on behalf of the SCPE collaboration of European Cerebral Palsy Registers.
Twin Research and Human Genetics, 2006, 9(3): 460-466
doi:10.1375/ twin.9.3.460