Moldova

Registry of Moldova

Year CP register established: 2018
Year 1st birth cohort registered: 2009
Geographic area covered: Republic of Moldova, 33,846 km2
Adverse health event or disability registered: Cerebral Palsy
Population in the area: 3.5 mln people
Number of cases / year: 180
Number of live births / year: 40,000

Switzerland

The Cerebral Palsy Register of St. Gallen (Swiss Cerebral Parese Register (SPRN))

Year CP register established: 2014
Year 1st birth cohort registered: 1997
Geographic area covered: 7% of Switzerland
Adverse health event or disability registered: Cerebral palsy
Population in the area: 426,000 (2015)
Number of cases / year: approx. 10

Sweden

CP Register of Western Sweden - Västsvenska CP-registret

Year CP register established: 1971
Year 1st birth cohort registered: 1954
Geographic area covered: Western Sweden (24% of Sweden)
Adverse health event or disability registered: Cerebral palsy
Population in the area: 2,100,000 inhabitants
Number of cases / year: approx. 50

Spain

Madrid Cerebral Palsy Register (DIMAS) -  Registro de Parálisis Cerebral de Madrid (Discapacidad en la Infancia Madrid-Sur)

Year CP register established: 2005
Geographic area covered: 1 health district of Madrid
Adverse health event or disability registered: Cerebral palsy
Population in the area: 650,000 inhabitants
Number of cases / year: 12

Slovenia

Slovenian Register of Cerebral Palsy / Slovenski register za cerebralno paralizo (SRCP)

Year CP register established: 2010
Geographic area covered: Slovenia (90%)
Adverse health event or disability registered: Cerebral palsy
Population in the area: 2,060,000 inhabitants (2015)
Number of cases / year: 31-54
Number of live births / year: avg. 21,000

Portugal

Programa Vigilância Nacional da Paralisia Cerebral aos 5 anos de Idade

Year CP register established: 2006
Year 1st birth cohort registered: 2001
Geographic area covered: Portugal (100%)
Adverse health event or disability registered: Cerebral palsy
Population in the area: 10,374,822 inhabitants (2014)
Number of cases / year: avg. 175

Norway

Norwegian Quality and Surveillance Registry for Cerebral Palsy (NorCP)  /  Norsk kvalitets- og oppfølgingsregister for cerebral parese (NorCP)

Year CP register established: 2006
Year 1st birth cohort registered: 1996 (previous CP register from Norwegian Institute of Public Health 1986-1995)
Geographic area covered: Norway (100%)
Adverse health event or disability registered: Cerebral palsy

Malta

The Cerebral Palsy Register of Malta

Year CP register established: 2014
Year 1st birth cohort registered: 2006
Geographic area covered: Malta (100%)
Adverse health event or disability registered: Cerebral palsy
Population in the area: 400,000 (2015)
Number of cases / year: approx. 8
Number of live births / year: avg. 4,098

Latvia

Cerebral Palsy Database of Riga

Year CP register established: 2010
Year 1st birth cohort registered: 2000
Geographic area covered: Riga (35% of Latvia)
Adverse health event or disability registered: Cerebral palsy
Population in the area: 698,086 inhabitants (2015)
Number of cases / year: 10-15
Number of live births / year: 7,514