- North of England
- Northern Ireland
- NECCPS
- Mersey
- Oxford
North of England
Year CP register established: 2016
(data going back to 1990 birth year)
Geographic area covered: Sunderland, Washington, Coalfields and North Easington
Adverse health event or disability registered: Cerebral palsy
Population in the area: approx 350,000 inhabitants
Number of cases / year: 10-20
Number of live births / year: approx. 3,400
Principal data sources: local paediatricians and physiotherapists
Administrative information
Address of the register:
Sunderland Royal Hospital, Kayll Rd, Sunderland, SR4 7TP
Name, speciality of the scientific professional in charge:
Karen Horridge, Paediatrician (Neurodisability)
SCPE center code: C32
Northern Ireland Cerebral Palsy Register (NICPR)
Year CP register established: 1992
Year 1st birth cohort registered: 1981
Geographic area covered: Northern Ireland (100%)
Adverse health event or disability registered: Cerebral Palsy; GMFCS; CP Type; Other impairments (e.g. intellectual impairment)
Population in the area: 1,564,382 persons aged 0 to 64 years (2016)
Number of cases / year: 51 (birth year 2011)
Number of live births / year: 25,273 (birth year 2011)
Principal data sources: Neonatologists; Hospital and community paediatricians; Senior and clinical medical officers; Paediatric physiotherapists; Orthopaedic surgeons; Special schools.
Administrative information
Address of the register:
School of Nursing and Midwifery, Queen's University Belfast, Room 1.35 Mulhouse Building, Royal Hospital Site, Grosvenor Road, Belfast BT12 6DP
Name, speciality of the scientific professional in charge:
Dr Oliver Perra, Lecturer in Perinatal Health and Wellbeing, Queen’s University Belfast
Dr Claire Kerr, Senior Lecturer in Rehabilitation, Queen’s University Belfast
Dr Karen McConnell, NICPR Research Fellow
SCPE center code: C05
North of England Collaborative Cerebral Palsy Survey (NECCPS)
Closed 2016
Year CP register established: 1991
Geographic area covered: North of England
Adverse health event or disability registered: Cerebral palsy
Population in the area: 3,000,000 inhabitants
Number of cases / year: approx. 65
Number of live births / year: approx. 32,000
Principal data sources: local paediatricians and physiotherapists
Administrative information
Address of the register:
Sunderland Royal Hospital, Kayll Rd, Sunderland, SR4 7TP
Name, speciality of the scientific professional in charge:
Karen Horridge, Paediatrician (Neurodisability)
SCPE center code: C08
Merseyside & Cheshire Cerebral Palsy Register
Closed 2010
Year CP register established: 1980
Year 1st birth cohort registered: 1966
Geographic area covered: Merseyside and Cheshire
Adverse health event or disability registered: Cerebral palsy
Population in the area: 2.5 million inhabitants
Number of cases / year: 65-90
Number of live births / year: 25,0000
Administrative information
Address of the register:
Department of Public Health, University of Liverpool
Name, speciality of the scientific professional in charge:
Professor Peter Pharoah
Dr Mary Jane Platt
SCPE center code: C11
Contact information:
Dr Mary Jane Platt, Norwich Medical School, University of East Anglia, Norwich NR4 7TJ
Email: m.platt@uea.ac.uk
Oxford
4Child
Closed 2011
SCPE center code: C09
Contact information:
Jenny Kurinczuk, National Perinatal Epidemiology Unit (NPEU), University of Oxford, Old Road Campus, Oxford, OX3 7LF
Email: jenny.kurinczuk@npeu.ox.ac.uk