Register for childhood disabilities and perinatal survey / Registre des Handicaps de l’Enfant et Observatoire Perinatal (RHEOP)

Year CP register established: 1991
Year 1st birth cohort registered: 1980
Geographic area covered: Isere, Savoy and H-Savoy (2.8% of France)
Adverse health event or disability registered:

  • Motor disability (requiring continuous rehabilitation or permanent technical assistance)
  • Sensory (hearing, visual) disability
  • Pervasive developmental disorders (PDD)
  • Intellectual impairment (including all trisomy 21)

Population in the area: 2,380,000 inhabitants (2015)
Number of cases / year: 32
Number of live births / year: 30,000
Principal data sources: medical files from hospital stays, centres for specific diagnosis and rehabilitation, paediatric hospital department and neonatal care units, institute for the allocation of special education and of financial aid for disabled persons.

Administrative information

Address of the register:
23, Avenue Albert 1er de Belgique, 38000 Grenoble, FRANCE

Name, speciality of the scientific professional in charge:
Elodie Sellier, MD, PhD and Anne Ego, MD, PhD

SCPE center code: C01

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