Member Registries

Member Registries (70)

Netherlands

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  Northern Netherlands

  Registry leader: Dr Dieuwke Broekstra Address: Department of Medical Genetics, University of Groningen, P O Box 30.001, 9700 RB Groningen, The Netherlands

  Email: d.c.broekstra@umcg.nl Phone: +31 6 25 65 1234

  Full member

Norway

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  Norway

  Registry leader: Kari Klungsøyr Address: Medical Birth Registry of Norway, Kalfarveien 31, N-5018 Bergen, Norway

  Email: kari.klungsoyr@fhi.no Phone: +47 5320 4023 Fax: +47 5320 4001

  Full member

Poland

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  Wielkopolska

  Registry leader: Prof Anna Latos‐Bielenska Address: Polish Registry of Congenital Malformations Department of Medical Genetics, Ul. Grunwaldzka 55 pav. 15, 60‐352, Pozna, Poland

  Email: alatos@ump.edu.pl Phone: +48 61 8547 345 Fax: +48 61 8547 345

  Full member

Portugal

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  South Portugal

  Registry leader: Dr Carlos Matias Dias Address: Registo Nacional de Anomalias Congénitas (RENAC), Departamento de Epidemiologia, Av. Padre Cruz, 1649-016, Lisbon, Portugal

  Phone: +351 217526404 or +351 217526469

  Full member

Spain

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  Basque Country

  Registry leader: María del Henar Sampedro García, BSBIO Address: Congenital Anomalies Registry (RACAV). Ministry of Health of the Basque Government; Directorate for Healthcare Planning, Organisation and Evaluation. Donostia-San Sebastián, 1, 01010 Vitoria-Gasteiz, Spain

  Email: registros-epidemiologicos@euskadi.eus Phone: +34 945 019280

  Full member
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  Navarra

  Registry leader: Maria Antonia Ramos Arroyo, MD, PhD Address: Complejo Hospitalario de Navarra, Calle Irunlarrea 4, 31008 Pamplona, Spain

  Email: ma.ramos.arroyo@navarra.es Phone: +34-848429243 Fax: +34-848429924

  Full member
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  Valencian Region

  Registry leader: Dr Clara Cavero Carbonell Address: Unidad Mixta de Investigación en Enfermedades Raras. FISABIO-UVEG. Avda. Cataluña, 21, 46020 Valencia, Spain

  Email: cavero_cla@gva.es Phone: +34 96 1 925724 Fax: +34 96 1 925703

  Full member

Switzerland

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  Vaud

  Registry leader: Dr Joanna Sichitiu Address: Registre Vaudois des malformations EUROCAT-Vaud, Maternité Département Femme-Mère –Enfant CH 1011 CHUV Lausanne

  Email: joanna.sichitiu@chuv.ch Phone: +41 79 556 34 67

  Full member

United Kingdom

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  England - NCARDRS

  Registry leader: Dr. Sarah Stevens

  Email: sarah.stevens1@nhs.net Phone: +44(0)117 986 9236

  Full member

Ukraine

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  OMNI-Net

  Registry leader: Dr Wladimir Wertelecki Address: OMNI-Net for Children, PO Box 246, Rivne, 33028 Ukraine

  Email: omninetukr@gmail.com Phone: +38 0362 623447 Fax: +38 0362 623447

  Full member